Disability Data Sources

The sites listed below are a small sample of the various data sources that can be utilized for research, grant writing, and other programmatic processes.

https://www.childhealthdata.org/learn-about-the-nsch/NSCH - The National Survey of Children’s Health (NSCH) provides rich data on multiple, intersecting aspects of children’s lives—including physical and mental health, access to quality health care, and the child’s family, neighborhood, school, and social context. The National Survey of Children's Health is funded and directed by the Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau (MCHB).

Annual Disability Statistics Compendium - The Annual Disability Statistics Compendium, Annual Disability Statistics Supplement, and State Reports for County-level Data are web-based tools that pool disability statistics published by various federal agencies together in one place. When working on legislative and other matters relating to persons with disabilities, the Compendium, Supplement, and State Reports make finding and using disability statistics easier.

https://disabilityhealth.jhu.edu/vaccine/ - This dashboard was created as a partnership between the Johns Hopkins Disability Health Research Center and the Center for Dignity in Healthcare for People with Disabilities as a starting point for understanding how the disability community is prioritized in COVID-19 vaccine distribution and intends to help people with disabilities determine when they qualify for a COVID-19 vaccine in their state.

This tool tracks vaccine prioritization plans across four categories for the 50 US states, 5 US territories, and the District of Columbia

  • Long-term care settings, such as nursing homes
  • Other types of congregate care settings, including group homes
  • People with chronic conditions
  • Additional disability-related groups, including three main groups: (1) people with disabilities who receive direct support care in the community, (2) people with intellectual or developmental disabilities, or (3) recipients of certain Medicaid programs

http://rtc.ruralinstitute.umt.edu/ - For nearly 30 years, RTC: Rural has conducted disability research as part of the Rural Institute at the University of Montana. RTC: Rural is funded by the National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR) to improve the ability of people with disabilities to engage in rural community living.

Some of the activities at RTC:

  • Perform research to solve rural problems.
  • Offer training and technical assistance to service providers.
  • Work to reduce barriers to community participation.
  • Present rural issues to disability groups.

https://www.arc.gov/research-and-data/ - The ARC helps policymakers and other ARC partners make more informed and effective development decisions, by sharing data, maps, and research on key economic, demographic, and quality of life factors impacting the Region, as well as evaluations of their grants’ impact. Their team of researchers, evaluators, mapping specialists, and economists tracks trends to help everyone better address the Region’s challenges.

https://datacenter.kidscount.org/ - KIDS COUNT is a project of the Annie E. Casey Foundation and a premier source of data on children and families. Each year, the Foundation produces a comprehensive report — the KIDS COUNT Data Book — that assesses child well-being in the United States. The indicators featured in the Data Book are also available in the Data Center.

https://www.census.gov/programs-surveys/acs - The American Community Survey (ACS) helps local officials, community leaders, and businesses understand the changes taking place in their communities. It is the premier source for detailed population and housing information about our nation.

https://www2.census.gov/geo/pdfs/education/brochures/MyCommunity.pdf - Finding Data for My Community- DEMOGRAPHIC, HOUSING AND ECONOMIC DATA - American FactFinder (AFF) is an online mapping and data dissemination tool that allows users to create, modify and download demographic data tables by a variety of geographic areas.

http://lmi.workforcewv.org/default.html - Explore trends in labor market and industry demands. Review top employers hiring in the state.

https://ddc.wv.gov/Pages/default.aspx - Employment First means employment in typical work settings, working side by side with people without disabilities, earning regular wages and benefits, and being part of the economic mainstream of society should be the first and preferred option for people with developmental disabilities. Data sheets and statistics available.

https://www.communitycommons.org/ - Clearinghouse of data tools. Specifically Disability Statistics resources like Cornell University’s data tool.

https://stateofbabies.org/state/west-virginia/ - This state profile provides a snapshot of how infants, toddlers, and their families are faring. View data for selected child, family, and policy indicators compared to national averages. The profile begins with a demographic description of the state’s babies and families to offer the broadest context for exploring what may be very different experiences of the state's youngest children.